The funds you raise sacrificing sugar during September will allow us to make programs for kids and adults living with muscular dystrophy happen at really important times in that person’s life. You help us ensure that we can offer these life changing opportunities to everyone who needs them.
George is an excellent powerchair soccer player and energetic four year old who doesn’t let his rare Nemaline Myopathy get in the way of having fun. George is currently on his ‘L plates’ but has dreams of one day being able to play with the bigger and faster boys.
Muscular Dystrophy NSW advocates for kids like George and helps connect them with their peers and activities they love at our Camps. Our services play an early role in a child's development and aim to circumvent the impacts of a decline in physical mobility by arming kids with the tools they need to think independently and make their own decisions about their lives.
Learn more about George and his family in the video below.
Andrew shared his experience about the importance of MDNSW online peer support groups.
“You face a lot of things alone with my disability and when you explain to people, they tend to switch off. Explaining problems to other people with neuromuscular conditions, it makes you feel normal. I feel better about myself and what I’m struggling with, because of this group. I understand it’s ok to have struggles and I am less embarrassed about the things I’m going through because people can relate. I’m grateful a group advocates for people with neuromuscular conditions like Muscular Dystrophy NSW.”
By fundraising for Sugar Free September you'll enable us to continue providing these critical support groups and reach more people like Andrew, especially those in hard to reach rural areas, who are feeling isolated.
Your Sugar Free impact in 2019
What Is Muscular Dystrophy?
Muscular Dystrophy is a neuromuscular, genetic disorder which results in the progressive deterioration of muscle strength and function. Muscular Dystrophy is the name of one of many different neuromuscular conditions.
Neuromuscular conditions are relatively rare, affecting approximately 1 in 1000 people. By that calculation, there are approximately 24,600 Australians living with a neuromuscular condition.
What We Do
Muscular Dystrophy NSW provides life-changing support and assistance to those affected by a neuromuscular condition to help them live longer, more fulfilled lives.
It aims to satisfy the unmet needs of as many of these people as possible through the provision of programs and services such as,
- Virtual Peer Support Programs such as The Power Hour and SMArties
- Children’s camps, youth short stay and adult respite programs
- Support co-ordination of National Disability Insurance Scheme plans
- Peer Connect programs for people impacted by a neuromuscular condition
- Access to sport and special interest programs
- Our innovative world-first Duke of Edinburgh's Award Program
At Muscular Dystrophy NSW we help build strength and reach potential through providing the tools to empower, connect and support those affected by a neuromuscular condition and by being an advocate for the neuromuscular community in NSW.