Who You Help

What Is Muscular Dystrophy?

Muscular Dystrophy is a degenerative neuromuscular disorder which weakens and wastes the muscles. The most common form is Duchenne Muscular Dystrophy which mainly affects boys. Onset of this condition is between 3 and 5 years of age and the disorder progresses rapidly with most boys completely dependent on a power wheelchair by their early teens. Life expectancy for this condition is usually into late twenties. There is no cure and no-one survives.

What We Do

Muscular Dystrophy NSW provides critical life-changing support and assistance to those affected by a neuromuscular condition to help them live longer, more fulfilled lives. It aims to satisfy the unmet needs of as many of these people as possible through the provision of programs and services such as:

  • Children’s camps, Youth short stay and Adult respite programs
  • Children’s camps, Youth short stay and Adult respite programs
  • Support co-ordination of National Disability Insurance Scheme Plans
  • Peer Connect programs for people impacted by a neuromuscular condition
  • Access to sport and special interest programs
  • Our innovative world-first Duke of Edinburgh's Award Program

Our Mission

At Muscular Dystrophy NSW we help build strength and reach potential through providing the tools to empower, connect and support those affected by a neuromuscular condition and by being an advocate for the neuromuscular community in NSW.

How You Help

Sugar Free September is all about giving SWEET opportunities to kids living with progressive muscle wasting conditions such as Muscular Dystrophy, opportunities like attending Muscular Dystrophy NSW’s skill development and capacity building camps.

Our camps play an early role in a child's development and aim to circumvent the impacts of a decline in physical mobility by arming kids with the tools they need to think independently and be in the best place to make their own decisions about their lives.

So when you empower yourself by going Sugar Free this September think about how you are directly helping to empower kids like Rhys here to live their best life! You know, we couldn't do what we do without you. Thank you!

Meet Rhys

Rhys was a first-time camper in 2018 and there was nothing going to stop him attanding this year, he loved the experience so much!

Rhys told us that the best part about camp for him was the water guns, tobogganing, and the party on the last night and he was also surprised every day with a new activity.

Rhys’ mum Prasani, told us that he thoroughly enjoyed camp. She was amazed at how much he'd gained from the experience, that he came home the same boy but with much more independence!

You can learn more about Muscular Dystrophy NSW Adventure Camp by clicking here

Going Sugar Free for 30 days is a challenge. Living with Muscular Dystrophy is much harder!

The funds you raise during sacrificing Sugar during September will allow us to make programs for kids living with MD happen at a really important time in a child’s life. You help us ensure that we can offer these life changing opportunities to all kids.

Thank you, we couldn’t do any of this without you! Please check out Joshua’s story below to learn more about how you help by watching the video.