Kendall and Neve Smith

I am going sugar free for people affected by Muscular Dystrophy

"Thanks for helping kids like me".
John, 8 years old living with Duchenne Muscular Dystrophy.

May 4th 2020

May 4th 2020 will be a date forever etched in my mind. We waiting for our Telehealth call (Covid times) and at 2.30pm the call came! This is the day Ellery our perfectly happy, kind, funny and forever smiley boy was diagnosed with BMD. Beckers was a condition I had googled and even told my husband that Ellery’s signs and symptoms fitted but reassuring ourselves that this could not be true, as it’s a genetic condition and no one in our family has struggles like El. 
As our amazing team at Westmead made small talk we knew something big was coming, with a deep breath and reassuring smiles Dr Jones confirmed what we now know that Ellery has Beckers muscular dystrophy.
 We had so many questions (still do) how/why and what does this mean for our little (not so little now) man. 
Fast forward 3 years 3 months and 27 days and here we are, a little slower with our pace, a lot of broken bones, some very cool mobility devices and most importantly Els still award winning smile. 
This year I would say has been our hardest with change, the realisation that he can’t do everything others can and what he needs to do to maintain his strength but also balance that with the ever important social life of a teenager 😅
Over the next month whilst not eating sugar, I will blog our day to day, the good the bad the ugly. You will meet some amazing people in our lives who   Are a huge part of Els journey. 

Tomorrow is the day so I’m off to enjoy my last day of sugar. 

Always grateful 

Kendall 

(currently sitting at Miami pool while El does hydro therapy early on a Thursday mornings)

Support my challenge to help kids and adults with muscular dystrophy!

I am going sugar free this September to raise funds and awareness for people living with neuromuscular conditions such as Muscular Dystrophy.

My fundraising efforts will give kids and adults with neuromuscular conditions access to specialised care, educational resources and support, better treatment options, stronger community ties, and direct services such as kid’s camps and adult retreats.

Please help me smash my fundraising goal by making a secure tax deductible donation today and by spreading the word on social media to encourage others to donate.

Thanks for joining me on this journey of making a difference. Together, we can make a significant impact and achieve remarkable results.

Want to give Kendall and Neve a short break with a SWEET RELEASE Pass?

Gift Kendall and Neve a Pass

Want to give Kendall and Neve a 1 day opt-out SWEET RELEASE Pass?

Gift Kendall and Neve a Pass

My Achievements

Thank you to my Sponsors

$211

Leonie Smith

To the awesome Smithies love always Granma & Pa ❤️❤️❤️❤️

$158.25

Sean Mcguinness

$126.60

The Dance Hub

Love you guys!!

$126.60

Sugar Free September Supporter

$126.60

Lynn Mchale

Ellery will always be our champion with award winning smile and kind heart with lots of humour and just fun to be around ! Go Ellery ! Love the McHales xxx

$126.60

Kimberlie Smart

All the best for the challenge girls!

$126.60

Sarah Colgate

$126.60

Cait O' Connor

$126.60

Nick And Lisa Shaw

We got you El-latrell 😁 love you guys always xx

$126.60

David Annesley

Great effort with the fund raising but even more so with raising awareness and helping others.

$126.60

Cathy & Tony Elliott

Have as much fun in life as you can.

$126.60

Sugar Free September Supporter

$105.50

Natasha Pezet

$105.50

Dalton Shaw

Love you fam 🤍 Dalt

$105

Sascha Gibson

Love you guys ❤️

$104

Gayle Thompson

$100

Breda Power

Great to see this happening

$84.40

The Crawleys

Great work guys ..!!!!

$63.30

Denise Long

Go Smiths

$63.30

Sugar Free September Supporter

$52.75

Tammy Ayres

Love to you all

$52.75

The Battiwalla Family

$52.75

Jen Riley

Sending so much love to you all xx

$52.75

Matt And Hailey Cecil

$52.75

Renee Murphy

We love you Smith family x

$41.80

Jacqui West

You legends xx

$31.65

Sugar Free September Supporter

$31.65

Ana

Big hug 🤗

$26.38

Layla And Tracey

Hope you are feeling better with the nonsugar

$21.10

Alisha Clifford

Well done guys xx

$21.10

The Sutherlands

We'll done. You're amazing.

$21.10

Kristy Lagiloaloa

$21.10

Keely Godwin

All the best guys 😊

$21.10

Kimberly Wood

Adore your family xx

$21.10

Anonymous

We love you Ellery xx

$21.10

Anonymous

$21

Katrina Demiris-iseppi

🫶🏏 🩵

$20

Lynne Hoare

$20

Melissa Everingham

Way to go Team - all the best 💞

$20

Sugar Free September Supporter