Kendall Smith

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Day 27- You are all so special

Day 27 SugarFree!! I’m beyond proud of myself for keeping this up. Being the only one in the family to take on the challenge I honestly thought it would be hard to be focused but hand on heart I didn’t feel like cheating not even once! 
So thank you for supporting me and giving me the strength to get through without the sweet stuff! 
I feel a bit dicky even saying it when in the grand scheme of things doing this challenge is easy. What our amazing MD kids face day in day out just blows my mind. It’s ironic that MD robes these kids of strength and muscle but they would have to be the strongest people I know and I’m so proud to be Ellery’s mum he makes me want to be a better person a stronger person someone who is just present and enjoy the small things. Ellery having MD has changed me for the better and I’m so glad you all have decided to come on this ride with us! Good the bad the ugly I know I can count on you all!! So thank you. 

3 days to go!!!! 

Kendall 

Day 25- really on the down hill run

I have been a little MIA this week I have had 2 kiddies under the weather. We had to have them Covid tested (negative) and a couple of days of school (no complaints here). I’m still sugar free and even though I was extremely exhausted from not much sleep I found myself not needing the sweet stuff!! 
We Only have 5 days left of sugarfreeforMD and Im so proud of all our efforts I have had some people join me (Sharon) going sugarfree  and so so many donations to help not only Ellery but many kids and families just like us! 
I have a feeling my next 5 post will be very reflective ( probably a little soppy) mixed in with a whole lot of we smashed it love. Thanks everyone Big El sending his love and thanks to all of you xx 

Kendall 

Day 21- Carrier and Neve

Sugarfree for 21 days!!! Never thought I would say that but here I am, a few kilos lighter a whole less cranky (so the fam tells me) and raising awareness for my boy and families like ours. 
I often forget to mention my daughter Neve and what all this means for her. To be honest I find it hard enough dealing with what I have given El and the thought of passing this onto my daughter also just send my mind racing (Here is that parent guilt again ). But then I take a deep breath and realise it’s something we need to know. When Nevey is 13ish she too will be tested to see if she is a carrier of the DMD gene just like I am. Her chance is 50/50 so what ever happens we will love and support her the best way we know how. 
Neve is a great sister to Ellery she helps him carry things that are to heavy she opens his chip packets and yogurts she doesn’t rub it in when she wins a running race (she is very fast) they are great friends and lucky to have each other. I’m a very lucky mum.  

Once again we have had some more extremely generous donations we are so lucky to be surrounded by so much love. 

Kendall 

Day 20- Weekend to reflect

I’m 20 days in of my sugarfree for MD and I’m pleased to say I have not been tempted at all!! 
My sacrifice to go without sugar is extremely easy in comparison to what Ellery and kids like Ellery go through everyday! 
We are constantly blown away by our generous friends/ family and community around us. Raising awareness and sharing our story has been really helpful for me personally. As I mentioned before the overwhelming feeling of guilt being the carrier of the gene. When Ellery has a bad day with pain or just an emotional day I feel it too, but being able to put my feelings down In a blog has been really helpful and clears my head to refocus on what I can do and this is why I am doing this challenge. I will continue to raise awareness and as much money as I can!! 10 Day left. Thank you everyone for all the donations it’s greatly appreciated. 

Kendall 

Day 18- Ellery’s 11th Birthday sugarfree style

Today our beautiful, kind, strong, funny and so loving boy turned 11. Never in our wildest dreams did i think 11 years ago Ellery would have MD, but if we are truely honest there always something that was not exactly right. Ellery walked late but we put it down to his very laid back nature. He wasn’t a climber but we thought that’s just him his dad wasn’t a climber either. As the years went on and Ellery spent many night in hospital we knew we Had to get to the bottom of his complaints. The raised CK the falling over the cramping the fatigue, the strange night sweats so many things but Ellery Seemed strong so we never really thought about MD but fast forward 11 years and it seems obvious now and we wonder how we missed the signs when they have been there all along.  But we always justified the not finishing a game of soccer the walking in Cross country the constant falling over, it was just Ellery laxy dazy big El. 
We don’t know what tomorrow will bring but today we celebrated Big El and he had a great day full of all his favourite things. We have learnt not to sweat the small stuff and just be kind, happy and grateful for all that we do have. Happy Birthday El I’m sugarfree 18 days for you my reason my favourite Son. 

Kendall 

Day 16- Big Week

Only 2 more sleeps until Ellery is 11, we absolutely love birthdays in our house we live away from all our family so I tend to go overboard with decorations and special food etc lots of sugar free this year 🤫Ellery has a small list of pretty much just shoes!! Funny thing he has always loved shoes even before he could walk (which he did pretty late) common for MD he has had a desire for good shoes. 
El has his last Rugby training tomorrow his Drs are happy about that, with his last game on Sunday 😢 lucky he still has cricket! Ellery is sports mad!!!! 

Kendall 

Day 15- Half way 🤩

Day 15, what a ride!! 15 days Sugar Free for MD. Not only have we raised a huge amount of money to Help children like Ellery but I have reconnected with so many people who are embracing the awareness Sugar Free for MD has provided. I have had so many questions about how Ellery is going what his future might look like and I’m so pleased to say with there help it makes the tough day’s a little brighter. It’s really once again had me lost for words (like I said yesterday never happens). 
Thanks everyone!! I’m not done yet Watch this space!! 


Kendall 

Day 14 - Another Day another wonderful donation

Over the weekend I was chatting to my family and I just wanted say a really big thank you!! Thank you to everyone who has donated. I understand things are tough for so many of you and the love and support shown to us really has me lost for words (which never happens by the way). We really feel like we are on this journey and it doesn’t feel lonely we feel the love and Ellery does too so a million times thank you we wish we could hug you all (Covid and boarder closure not playing nice). 
It’s birthday week for El in our house and sugarfree cake will make an appearance 🤣 wish me 
luck xx 

Kendall 

Day 12- fun in the sun

Today a few girlfriends and I went on a big walk from the city to Manly around 25km took roughly 5 hours. I was feeling a little apprehensive considering I would have no sugar!! Proud to say I did it and felt surprisingly great!! Ellery obviously didn’t come but he was so proud of me and along the way we found a reserve with the perfect name! (See the pics). 
Let’s hope we can walk tomorrow. Thank you Dolores, Kim, Danielle and Michelle for making a big sugarfree walk fun xx 

Kendall

Day 11- All for you

Today Day 11 without Sugar and upto this point I have not craved it or thought I was missing out, I hope this can continue for the remaining 19 days. 
Today Ellery woke sore and tired he was walking a little slower and feeling a little frustrated with everything today. We don’t have many days like this and we constantly remind him of how lucky he is and how strong and loved he is. Like so many others on this Journey we just have to take each day as it comes, lots of cuddles and rest over the weekend. 
Once again thanks for the support and kind words we have raised over $6000 for MD. 

Kendall 

Day 9-10 Time flys when your having no sugar

I can’t believe I’m 10 days in with no sugar!! I wasn’t sure how I would feel giving up the sweet stuff, but it’s really been the best thing. I have more energy, I sleep better seems I have more time and patience around the house (according to the family) not to mention the clothes are a little loose which is an added bonus!! 
Ellery is doing well he has started walking home from school a day or 2 a week which is fantastic is around 800m he is loving the independence this has given him, his sister is always close by to lend a hand if need be! Thank you again for each and every donation we are doing good things for MD. 
#sugarfreeformd 

Kendall 

Day 8- Smiles all round

One week into sugar free and the sacrifice is so small in comparison to what these children go through every day. We are extremely lucky  Ellery is doing really well and he loves reading every comment and is blown away with all the funds raised for such a great cause. He wanted to thank everyone for the support and love shown to all of us.
 He also thinks I'm much happier in the morning not having sugar (I don't know about that)

Kendall

Day 7- So much support

Hi Everyone, 

Day 7 of sugarfree for MD and what special day it is! Today is world Duchenne Awareness Day. 7/9  date has a particular relevance with DMD and BMD boys because date 7/9 represents the 79 Exons of the Duchenne gene. So today we are making relevance to the day by having a special family dinner with Ellery favourite cheese cake sugarfree of course. 

Kendall

Day 6- Sugar free Father’s Day.

Today we celebrated Fathers Day Sugar free style! Kids played sport in separate parts of Sydney then we came together to celebrate Dad. 
Lots of sugar free fun was had. Looking forward to the start of another Sugarefree week!! 

Kendall 

Day 5 - Fun in the Sun

Today I went on a huge 22km walk with a lovely friend. We chatted about so much and sugar never crossed my mind. I’m super lucky to have so much support. Have doubled our target and some!! Beyond proud and so happy. 


Kendall 

day 4-Going strong

HI Everyone Day 4 

Today Ellery presented to his Peers at school and spoke about his Journey so far with BMD, we are so proud of him. He was open about his feelings and how he is hopeful for his future, he is wise beyond his years!!
First Friday of sugar free September, I think this will be my hardest day yet. 

Thank you again amazing family and Friends. 

Kendall

Day 3 - Smashing Goals

Once again I’m blown away by the support from everyone. 
We have been busy with appointments yesterday and today! Ellery is doing great 👍 and being so awesome. 
Sugar free is going well so far! 

Kendall 

Day 2 - You are all amazing

Huge thank you to everyone for the donations, I have gone well past my target it’s amazing, I think we can reach $5K. 
Ellery has reads every single message and I wish you could all see his smile. Ellery is in Westmead today to see the Orthopaedic specialist. Ellery has a team of about 7-8 doctors who we see regularly. 
Once again I’m so lucky to have so much support thank you all again I’m surviving no sugar (1) day better then I thought 😉

Kendall  


Day 1 - Reason Why!

Morning, 

Today I start my month of sugar free for MD! As a mum of a Son with BMD I felt is was a little something I could do to show El I’m with him on this journey. I have a certain amount of parent guilt as through testing I was advise I was indeed the carrier of the DMD gene and had passed this onto Ellery. Instantly I felt a massive pit in my stomach and I just was so upset, how? Why? I felt extremely overwhelmed and a massive amount of guilt. Ellery holds no resentment towards me, just love and he often says it’s nice that just you and I can share something together, he is wise beyond his years and so funny. 

Kendall 

Hi There!

Our Son Ellery was diagnosed with Becker muscular dystrophy in March. Although it was a shock to us all we are positive and supporting Ellery the best way we can.

So this September I am going sugar free to raise funds and give SWEET opportunities to kids living with the challenges of muscle wasting conditions, such as Muscular Dystrophy.

Please help me smash my fundraising goal by making a secure tax deductable online donation and by doing a shout out on social media to encourage others to donate and help me through!

Thanks so much for your support! Honestly, I couldn’t get through this September without you.


Kendall 

Thank you to my Sponsors

$515

Payce & Sekisui House

On behalf of the team at Melrose Park, we wish you, Ellery and your family all the best!

$313.20

Dentavision

Well done Kenny + Gordo on your fabulous efforts supporting a great cause! We are so proud of you, and are your biggest fans! Keep up the great work, from your team at Dentavision

$313.20

Michael And Jenna Vella

Good on you beautiful lady, what you are doing is amazing for such a wonderful cause. It is very hard to go without sugar. Absolutely love your blog updates. Ellery is a brave little boy getting up and speaking in front of his class. Him and Neve are so lucky to have such wonderful parents. We love you guys xxxx

$313.20

Kimberlie Smart

Kobe was filling us all in on what Ellery is going through and said to “make the donation big mum!”

$208.80

Lance Brooks

$104.40

Prama Murugasu

$104.40

Kylie, Nath, Mia, Ruby & Cayden Cruise

You got this !!!

$104.40

Leonie Smith

To our awesome grandson Ellery we love you what a super project well done love Granma & Pa 🥰💖💕

$104.40

Donna Hoblos

great work your doing and all the best :)

$104.40

Damian Shannon

$104.40

Kim Casey

$104.40

Brian Morley

Well done, Ellery. Going without a birthday cake is a big sacrifice. Cheers Di & Brian Morley

$104.40

Lynn Mchale

Good luck - I’m sure you will reach your target in no time - Love always 💗

$104.40

Parks

$104.40

Kathleen O’connor

good luck Kendall, a great woman to have in your corner!

$104.40

Marg Porter

Sending heaps of love to you all, Ellery must be one very brave boy and you are amazing Kendall, thinking of you all at this time.xx

$104.40

Dstdm Batinovic

$104.40

Breda Power

Giving you a sweet pass 🤗💖

$104.40

Anonymous

Thinking of you all. The more money raised the better & because Ellery is so young I pray he sees great advancements in treatments & a cure in his lifetime xx

$104.40

The Prichard’s

All our love to your Kendall, Trent & especially Ellery. If anyone can grab this by the balls - it’s you Kendall. xxxx

$104.40

Jen Riley

Sending so much love and support to such a beautiful family. Miss you all xx

$100

Danielle Davis

Big hugs to you all

$100

Kel Battiwalla

Love to you all Smiths and you’ve got this Kendall

$100

Lisa Shaw

Love you guys 💙 to my handsome godson Ellery, your a little champion 😘😘love Uncle Nick & Auntie Lisa xxxx

$100

Nick Shaw

Love you, Ellery 💙 😘😘 Nan and Pa xx

$100

Kim Bowen

$100

Denise Long

Good on you Ken. Well done. All our love and many prayers to you Ellery, Trent and Neave.

$100

Bek Zadow

Love to you all xo Good luck with the challenge Kendall xo

$100

Tracie Ayres

My thoughts and prayers are with you all

$100

Anonymous

Love you guys!! And lots of love to big E xoxo

$100

Breda Power

$83.52

Leonie Smith

From Pa’s tennis mates at Banora Point wishing you all the very best

$52.20

Karren Gerakis

Good luck and well done

$52.20

Laura Andrews

Thinking of you all. You got this Kendall xx

$52.20

Samantha

Lots of sweet love from us 💕

$52.20

Maree, Aaliyah & Your Little Mate, Dom Xox

We're all behind you Ellery!!

$52.20

Clint & Lucie Porter

Hey Kendall, thinking of you guys. Sending all our love.

$52.20

Peta English

Love ya Celery 😁! From Ryan

$52.20

Janice Long

What a wonderful idea and an equally wonderful family xx

$52.20

Kolosakas Family

Great cause Kendall We think your awesome ❤❤

$52.20

The Cullens X

Good on you Kendall! You’ve got this!!

$52.20

Toni Funch

Lots of love to you xx

$52.20

Danielle Michaels

You’ve totally got this, Kendall!

$52.20

Tom & Angela

Great stuff Kendall! You've raised so much awareness of this really important cause and done an amazing thing for your family.

$52.20

Tharanga Ariyachandra

All the best Kendall!! Sending love to you and your family.

$52.20

Martain Family

All our love from tassie 😘

$52.20

Tracey, Steve & Nathan Smart

Best of luck to you all, especially Ellery, he's such a great kid xx

$52.20

Kellie & Josh Moore

Love you guys ❤️😘

$52.20

Tan And Al Alempijevic

All the best Kenny! Ellery is a lucky young man to have such an amazing and loving family to support him through his life journey. Much love to you all. 💕

$52.20

Dylan, Lorelei & Max

All of our love, Ellery is a lucky lad to have his family in his corner!! xx

$52.20

Rachel Fitzpatrick5

Good luck Kendall!!! Thinking of you all! Love Miss Fitzpatrick xx

$52.20

Nu Dental

$52.20

Alex Miller

You got this Kendall. Ellery has a special place in my heart and is lucky to have such a beautiful support system. Big hugs ❤

$52.20

The Braggs

Such a strong amazing boy. Great challenge kendall

$52.20

Adam And Belinda Hayden

Smashing it Kendall 👏🏻👏🏻

$52.20

Ros Wagstaff

All my love xo

$52.20

Rachael Julius

You got this Kenny, Ellery and family x

$52.20

Sarah Garbellotto

All the best and congratulations for raising awareness! I think you are awesome! Well done xxx

$52.20

Sally Roche

$52.20

Cindy King

Good luck with the sugar free & best wishes to Ellery lots of love Cindy & Des

$52.20

The Donald Family

Thinking of you all

$52.20

Lauren Abraham

Goodluck Kendall! You’ve got this. El is such a great kid and he will be inspiration to many.

$52.20

Alisha Clifford

💗💗

$52.20

Suzanne Stuart

With love Sue&Clan Stuart

$52.20

Phily And Liz Conlon

Great job guys!!!

$52.20

Ben And Stacey

$52.20

Davies

You’ve absolutely got this! Massive hugs love Dando /Davies family xx

$50

Ebonnie Batinovic

Well done Ken ♥️ love you Elle xx

$50

Schindler Family

$50

Renee Murphy

Love to you Smiths ❤️ From Murphy family x

$50

Maree Andrews

Wishing you all the best, hope you raise lots to help Ellery. Love you

$50

Marni Tuala

❤️🍭🍬

$50

Chrissy And Mia Kuruvilla

Hey Kendall, when I showed this to Mia she really wanted to show her support for Ellery. She has many happy memories with Ellery at MPPS! Our prayers are with you all. Xxoo

$50

Jacqui West

💙💙

$40

Taylor Badgette

$31.32

Nathan Andrews

Much love Kendall xx

$31.32

Hayley, Jack & Willow

❤️❤️❤️

$31.32

Leonie Smith

Chris O’Reilly sending lots of love to Kendall, Trent, Ellery & Neve xxxx

$28.19

Deborah Riley

$26.10

Pearce’s

You’re blessed Ellery your Mum is Amazing xxx best wishes and hugs Pearce family x

$26.10

Millie Tyson

What a great cause x

$26.10

Melina And Hugo

$26.10

Debora Krizak

Wishing you all the very best Kendall.

$26.10

Lagiloaloa

$25

Julie Hoade

What an exceptional role model you are Ken...you’ve got this...💙

$25

Sharon Gordon

❤️❤️❤️

$20.88

Brid Bowers

$20.88

Angus Martin

$20.88

Shanna Hayward

$20.88

Lourenco Ana

Big hug 🤗

$20.88

D N B Smith

$20.88

Melissa Everingham

Lots of love 💕

$20.88

Covell

XxxX

$20.88

Hilary Borini

Thinking of you, Kendall! I'm a close friend of Ebs. A small donation to put towards a very worthwhile charity.

$20.88

Adriana Pielak

Lots of love to you and Ellery ❤️ Such a sweet boy in class!

$20

Helen And David Whipps

Good on you Kendall... stay strong .. I’m Aunty Julie’s friend..

$15

Natalie Stafford-smith

Thinking of you

$10.44

Kristie

You’ve got this Kendall! You are such a wonderful mum and El is such a lucky kid to have you as his. Sending love and strength xx

$10

Catherine James

Good luck